Ethical review of research into rare genetic disorders

BMJ. 2004 Jul 31;329(7460):288-9. doi: 10.1136/bmj.329.7460.288.

Abstract

Although some work on rare diseases is clearly clinical investigation and some clearly research, much activity falls uneasily between the two. Where should we draw the line and how can we ensure research gets appropriate ethical review?

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Ethical Review*
  • Ethics Committees
  • Ethics, Research*
  • Genetic Diseases, Inborn / genetics*
  • Rare Diseases / genetics*
  • Risk Management