A closer look revisited: are we subjects or are we donors?

Genet Med. 2012 Apr;14(4):458-60. doi: 10.1038/gim.2012.6. Epub 2012 Feb 23.

Abstract

The author offers personal reflections on the implications of the article "Managing Incidental Findings & Research Results in Genomic Research Involving Biobanks & Archived Datasets" in terms of how the article addresses serious knowledge disparities and differing expectations between participants and researchers.Genet Med 2012:14(4):458-460.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • BRCA1 Protein / genetics*
  • Biomedical Research / ethics
  • Biomedical Research / methods
  • Biomedical Research / statistics & numerical data
  • Breast Neoplasms / diagnosis
  • Breast Neoplasms / genetics*
  • Breast Neoplasms / prevention & control
  • Female
  • Genetic Testing / ethics
  • Genetics, Medical / ethics
  • Genetics, Medical / methods
  • Genetics, Medical / statistics & numerical data
  • Genomics / ethics
  • Genomics / methods
  • Genomics / statistics & numerical data
  • Humans
  • Incidental Findings
  • Mutation*
  • Research Subjects
  • Researcher-Subject Relations / ethics
  • Truth Disclosure / ethics

Substances

  • BRCA1 Protein