Motivators for Alzheimer's disease clinical trial participation

Aging Clin Exp Res. 2018 Feb;30(2):209-212. doi: 10.1007/s40520-017-0771-2. Epub 2017 May 18.

Abstract

Background: Alzheimer's disease (AD) research progress is impeded due to participant recruitment challenges. This study seeks to better understand, from the perspective of individuals engaged in clinical trials (CTs), research motivations.

Methods: Participants, or their caregivers, from AD treatment and prevention CTs were surveyed about research motivators.

Results: The 87 respondents had a mean age of 72.2, were predominantly Caucasian, 55.2% were male, and 56.3% had cognitive impairment. An overwhelming majority rated the potential to help themselves or a loved one and the potential to help others in the future as important motivators. Relatively few respondents were motivated by free healthcare, monetary rewards, or to make others happy.

Conclusions: Recruitment efforts should focus on the potential benefit for the individual, their loved ones, and others in the future rather than free healthcare or monetary rewards.

Keywords: Clinical trials; Motivation; Recruitment.

MeSH terms

  • Alzheimer Disease / drug therapy
  • Alzheimer Disease / psychology*
  • Caregivers / psychology
  • Clinical Trials as Topic*
  • Female
  • Humans
  • Male
  • Motivation*
  • Patient Participation / psychology*
  • Patient Selection*
  • Research Design
  • Surveys and Questionnaires