How Can Participant Experience of Quality-of-Life Research Be Improved in Cancer Research: Views of the Patient and Public Involvement Representatives from the STAMPEDE2 Prostate Cancer Trial

Minal Padden-Modi; Hannah Rush; Hoda Abdel-Aty; David Matheson; Robin Millman; Patrick Williams; Bertrand Tombal; Nicholas James

doi:10.1016/j.euo.2024.07.012

How Can Participant Experience of Quality-of-Life Research Be Improved in Cancer Research: Views of the Patient and Public Involvement Representatives from the STAMPEDE2 Prostate Cancer Trial

Eur Urol Oncol. 2024 Oct;7(5):990-992. doi: 10.1016/j.euo.2024.07.012. Epub 2024 Aug 21.

Authors

Minal Padden-Modi¹, Hannah Rush², Hoda Abdel-Aty³, David Matheson⁴, Robin Millman⁵, Patrick Williams⁵, Bertrand Tombal⁶, Nicholas James³

Affiliations

¹ Institute of Cancer Research and Royal Marsden Hospital NHS Foundation Trust, London, UK; MRC Clinical Trials Unit, Institute of Clinical Trials and Methodology, University College London, London, UK. Electronic address: minal.padden-modi@icr.ac.uk.
² MRC Clinical Trials Unit, Institute of Clinical Trials and Methodology, University College London, London, UK. Electronic address: h.rush@ucl.ac.uk.
³ Institute of Cancer Research and Royal Marsden Hospital NHS Foundation Trust, London, UK; MRC Clinical Trials Unit, Institute of Clinical Trials and Methodology, University College London, London, UK.
⁴ MRC Clinical Trials Unit, Institute of Clinical Trials and Methodology, University College London, London, UK; Health and Wellbeing, Faculty of Education, Wolverhampton University Walsall Campus, Walsall, UK.
⁵ MRC Clinical Trials Unit, Institute of Clinical Trials and Methodology, University College London, London, UK.
⁶ Institut de Recherche Clinique, Université Catholique de Louvain, Louvain-la-Neuve, Belgium.

PMID: 39168780
DOI: 10.1016/j.euo.2024.07.012

Abstract

Enhancement of the participant experience in quality of life (QOL) research is imperative to improve recruitment and ongoing engagement in QOL studies. Implementation of recommendations made by the patient and public involvement representatives for STAMPEDE2 could optimise the impact of QOL studies, with a benefit for participants and collection of invaluable data for cancer care research.

MeSH terms

Biomedical Research
Humans
Male
Patient Participation / psychology
Prostatic Neoplasms* / psychology
Prostatic Neoplasms* / therapy
Quality of Life*