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Modified Delphi procedure-based expert consensus on endpoints for an international disease registry for Metachromatic Leukodystrophy: The European Metachromatic Leukodystrophy initiative (MLDi).
Schoenmakers DH, Beerepoot S, van den Berg S, Adang L, Bley A, Boelens JJ, Fumagalli F, Goettsch WG, Grønborg S, Groeschel S, van Hasselt PM, Hollak CEM, Lindemans C, Mochel F, Mol PGM, Sevin C, Zerem A, Schöls L, Wolf NI. Schoenmakers DH, et al. Among authors: goettsch wg. Orphanet J Rare Dis. 2022 Feb 14;17(1):48. doi: 10.1186/s13023-022-02189-w. Orphanet J Rare Dis. 2022. PMID: 35164810 Free PMC article.
Uncertainty management in regulatory and health technology assessment decision-making on drugs: guidance of the HTAi-DIA Working Group.
Hogervorst MA, Vreman R, Heikkinen I, Bagchi I, Gutierrez-Ibarluzea I, Ryll B, Eichler HG, Petelos E, Tunis S, Sapede C, Goettsch W, Janssens R, Huys I, Barbier L, DeJean D, Strammiello V, Lingri D, Goodall M, Papadaki M, Toussi M, Voulgaraki D, Mitan A, Oortwijn W. Hogervorst MA, et al. Int J Technol Assess Health Care. 2023 Jun 16;39(1):e40. doi: 10.1017/S0266462323000375. Int J Technol Assess Health Care. 2023. PMID: 37325997 Free PMC article. Review.
An Inclusive Civil Society Dialogue for Successful Implementation of the EU HTA Regulation: Call to Action to Ensure Appropriate Involvement of Stakeholders and Collaborators.
Desmet T, Julian E, Van Dyck W, Huys I, Simoens S, Giuliani R, Toumi M, Dierks C, Dierks J, Cardone A, Houÿez F, Pavlovic M, Berntgen M, Mol P, Schiel A, Goettsch W, Gianfrate F, Capri S, Ryan J, Ducournau P, Solà-Morales O, Ruof J. Desmet T, et al. J Mark Access Health Policy. 2024 Mar 14;12(1):21-34. doi: 10.3390/jmahp12010004. eCollection 2024 Mar. J Mark Access Health Policy. 2024. PMID: 38544972 Free PMC article.
144 results